It’s been a very mixed week for Harry, he’s had both radiotherapy and chemotherapy all week and coped really well until Friday when he felt pretty rubbish.

We had been managing the sickness and he’d been having lots of fun when he was home but it builds up and takes it toll on him . It breaks my heart to see my boy feeling and being so poorly but Harry takes it in his stride every time, he amazes me.

We had been managing the sickness and he’d been having lots of fun when he was home but it builds up and takes it toll on him . It breaks my heart to see my boy feeling and being so poorly but Harry takes it in his stride every time, he amazes me.

Oscar is a real support and knows how to help or what to do for both Harry and me. No children should have to do this though 😥

We are half way through radiotherapy now and are getting closer to a plan for the trial (Omburtamab/8H9) Harry will have to have further tests and an operation to place an Ommaya port (tube that goes into his CNS) in readiness for the treatment abroad. We think this will likely start early April but the hospital is yet to be confirmed.

Thank you for your continued love and support . xxx
💙 💛🌎💛